Have been in hospital for almost two weeks. Lost all feeling in legs and hands now too, and pain in back and hands has increased to 11.
Am in hospital until I can walk and take care of myself. Neurological disease called Transverse Myelitis. One in a million people get it. Docs know nothing really. Am unable to think straight, although mental acuity is returning bit by bit. Suddenly lost all ability to move my lower limbs, three hours after the onset and trip to the ER lost movement in hands. Cannot go home until I can walk some with my walker. Am up to painful shuffling: a foot at a time using the walker. Can’t fall, cracking my skull. This had already happened in the several weeks preceding. Not sure it would matter.
THIS is the year of the unexpected disease! Watch your back kids.
p.s. didn’t remember how to log in and post. Now that is fucked up.
I may walk in 2 or three weeks. Or never. Oh physical rehab how I do love thee
My friends are passing through Reno to Burning Man. I am missing my 9th year. I hurt. This is fucking depressing as hell. The steroids made me psychotic. Literally
Hospital food is hideous. No one visits because this place is out in the boonies. I need ice cream, cobbler, sweets, a decent cup of coffee.
Okay Done Ranting and Rambling. Burn On kids!
~Miss R
YoYo-Dyne Propulsion Labs: Reno Division 
Thinking of you Rachael, and do get back on your feet. Miss you!!!
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Thank you Don. Late in the response but heartfelt in my feelings 🙂
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You’re welcome Rachael. I hope you noticed that I changed the title of my blog to A Pondering Mind… 🙂
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OMG wondered who A Pondering Mind was in my post emails. haha. Thanks for the heads up hon.
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Again Rachael, you’re welcome… Good friends are what makes this world go around…
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Thinking of you and sending you some well wishes!
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Edward that is so kind. finally able to type more than a few words.. in less than 10 minutes -grin-. Be well and thank you!
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You deserve good things! I hope you get them.
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thank you for your kindness
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It’s absolute. You absolutely deserve good things!
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I won’t click on the ‘LIKE’ because I don’t like to think of you hurting so much my great friend, soooooo now I am sending you my most positive vibes, and don’t be thinking that the Zombies are delivering those, oh no, for you, this time it has to be the Stripping Surgeons…
They sing too but only when the spanking gets too much for them and I can see you being over generous with that flip-flop with added tacks, I mean sharpened spikes, or is it broken shards of glass, you know, for a better understanding of BDSM Commando Style 🙂 BTW – The Specialist has a large red target painted on his ass too so get your catapult ready, his legs are wide open and he is bending over a chair, yes of course he is bending forwards, cheeky 😉 How rude lmao
Okay take aim and ZAPP those wobbly bits as many times as you can before his screams are heard 😦 Any stray doctors can be handcuffed and paraded in the patient’s lounge afterwards but no nipping of their bare bottoms until the whistle blows and then just enjoy the game. The winner is the last doctor to shout Geronimo, which in medical lingo just means WTF as his nuts are tweaked by every patient in the hospital.
Virtual musical chairs is part of round three but by that time nobody will want to sit down as their asses will be too sore 😦 Anyway you play this game better than anyone I know so I am sure that you will enjoy it immensely 🙂 Get well soon Rachael and know that I am thinking of you my dear 🙂 🙂
Andro xxxx
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OMG Androgoth, make me look bad…I clicked like and then thought WTF did I do that for 😦 Big hugs, hope you get well soon.Transverse Mylitis begone ya bastard!!!!
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Loon are those hugs for me too? 😉 🙂
I agree totally Fookorf Transverse Mylitis
or I am sending the Zombies round 🙂
I hope you are feeling a bit better today Miss. R
no I don’t, I want you feeling loads better, WTF
am I saying… Oh and can you take your hands
off that doctors scrotum as he has gone a purpley
shade of ghoul with a hint of skeletons bone 😦 lmao
Come on Rachael fight on
and come back soon, or else? 😉 🙂
Andro xxxx
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I can so picture Rachael squeezing the doc’s balls blue 🙂 Hug to you too Androgoth xx
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A pincer-like grip I bet 😦 *yooooowl*
I hope your Monday is a brilliant one
Loon my sweet and great friend 🙂 😉
Andro xxxx
I hope you are feeling
much better soon Rachael 🙂
Andro xxxx
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I feel the power of Loon! Begone Myelitis! Take me down to the river oh lawd!
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Loon, I do that too. I really like someone’s post and then realize that ‘Like’ is kinda wrong for something disturbing or sad.
Oh well, it’s what makes us great!
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Andro my dark Sweet. At least my ass still has feeling, so bring on the spankings. Miss you Soooooo much. Kiss a zombie on the head for me ;:; Be careful, lest the undead grab your crop and turn it upon you. Miss your videos and love your newest Wombie art?
xoxo
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I will be making some new videos soon, hey I will pass on the Zombie kissing, I was going to say head but I know how naughty you are so omitted that word and, eeeuw the thought of kissing one of those critters, I mean they are so revolting at the best of times 😦 I am pleased that your ass has some feeling as spanking has to be carried out on a daily basis in order to improve the fetish tastes of everyone, well it can’t hurt can it? Well unless it is a studded paddle and then it might smart a bit afterwards 😉 lmao
Hey Rachael keep getting better all the time and give that doctor a kick in the nuts if he hurts you with his little prick again, noooo I mean his injections, cheeky 🙂 lol
It’s a god job that you know I am joking around 🙂 😉
Andro xxxx
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Oh goody! More videos from the dark, demented and delicious mind of Andro.
Will give said doctor a right kick in the ‘nads or at least a poke with a baseball bat.
I’m that forgiving.
xoxoxo
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Sorry I missed your most recent postings, crappy updater never gives me the full picture and loads of post are missed because of it… I didn’t even know that you were back but I should have called in so I won’t make excuses. I am just pleased that you are feeling better and that you are able to post again, I know you have a hard enough time with things dear Rachael so next time you are around give me a nudge, or else? 😉
Be Good… Oh and I really like your Piano Wench photo, wow wicked or what? 😉
Andro xxxx
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Oh no….good thoughts on recovery soon (and NO PAIN)
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Bearman you are the bestest. Many belated thank yous for the well wishes. Pain has gone from ‘need the oxy’ to weird electrical shocks that make me twitch and cause numbness. Am thinking of renting myself out as a carnival ride at Six Flags heh.
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That is just… ridiculously, unimaginably awful.
I mean… I literally don’t know what to say (odd for me, because I’m a natural smart***).
I just keep hoping to see that things have improved… dramatically… as soon as possible (scratch that time frame – even ‘sooner’ than that).
Ooof. Thinking of you, Ms. B…
😦
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Bob, have seen a few (not enough!) of your newer pieces of art. Can hardly wait to see the wedding photos from your shoot. Say, that could be a fabulously bad pun if it were a shotgun wedding.
Uh, couldn’t help myself.
xo
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Send the hospital address and I’ll mail sweets and some books.
And think how much fun next years Burning Man will be, just to make up for missing this one!
Hope you’re out fo there before a package cn reach you.
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Am out of the hospital for almost a month. Still unable to walk without a walker and dumba** neurolist still has no idea of my prognosis. It is SO FUCKING LONELY and boring. Can’t fix my own food, do laundry, or allowed out for a walk unless with the walker and a skilled physical therapist or medical professional. Luckily mom drives from California every 2 weeks to do the laundry and get me fresh veggies and… cheese!
Doing kick-ass at my PT and OT, but walking? Will be a year if I am lucky.
No naked bar dances for a while. You’re just gonna have to take over!
p.s. Had a friend of mine take my Naked Bar Dance from 4th of Juplaya… Just for you! Will block out the naughty bits hahahaha
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Oh, would love a care package if you’re still up to it. Getting anything in the mail besides medical bills -and my fucking driver’s license renewal notice, would be fab. Hell, a postcard would be welcome -grin-
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Holy crap!
Glad you’re out of the hospital, and happy that you’re the PT and OT are going well.
Your tough, lady. You’ll bounce back even tougher.
Nothing wrong with just dancing in a chair. It’s good for the soul.
(Better when undressed.)
(Or so I’ve heard…)
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You should try it. Liberation for the soul. Send me a man from your area in the Mysterious East. Want to try dancing with a partner. Naked. Of course.
xoxo
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So so sorry to hear of your ordeal, Rachel. That’s horrible. You really need this like a hole in the head after everything else you’ve been through. I know you haven’t been around for quite some time, but the last time I asked you were busy preparing for the Burning Man, so I thought you were just consumed with all that fun stuff. I had no idea of what you’ve been going through.
I certainly hope you will recover fully and quickly. I know you’re a fighter and that should certainly help. I know it won’t be easy, but I hope you can get out of the hospital as soon as possible.
Take care, Rachel. And get well soon!
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Binky, please tell Peter that you have been a truly good friend through all of this. Looking forward to the wine gums -smile-. YOU be well and take care.
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I hope you recover from this, Rach! I’ll be praying for you!
Love and hugs xxx
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Deb, what can I say? I’m honored that you are thinking of me. Love and Hugs back atcha!
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What a lovely surprise it was seeing you in my Space Rachael
and to know that you are giving those Doctor’s hell is even better,
they need putting in place sometimes, I mean what the hell do
they know what we can or cannot do? Idiots…
You show ’em babe, keep them wondering what you will do next
and if that entails any cartwheeling then don’t forget to pop your
thong in place or they will be recollecting your wickedness via a
Youtube playback, those doctor’s are kinky you know? 😦 lmao
Seriously though, yes I can be serious sometimes 🙂 I am sending
you my most wicked vibes, I know that you will beat them, probably
over the head with a large mallet, but definitely show those knobs
what you are capable of and I know how brave you are, just take
things easy and don’t be overdoing anything (No naughtiness on
weekend for starters either, you need all of your strength to aid a
strong recovery), how do you mean it’s not just at the weekends? 😉
Well just be good and get ready to bend over when instructed, just
because you are slapping a few doctor’s asses doesn’t mean that
yours is any safer 😉 lmao Get well soon Rachael my great friend 🙂
Andro xxxx
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Catching the wicked vibes Andro! No naughtiness for me these days. Guess you’ll have to pick up the slack hehehehe
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How do you mean no naughtiness, that will
be for later so get well again soon or else? 😉
Picking up the slack
sounds naughty but nice 🙂
Andro xxxx
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It was hard to hit the like button as things are sucking so badly and I hate seeing that. You are in my thoughts (both my brain cells). Cuddles, Miss R.
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Oh Bear you’re so fab. Promise to begin making nonsensical comments on your blog again.
Cuddles and a back rub, Hello to your parents and family. Keep up the beer and wine tasting for me!
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I will if they’ll make the effort to go to the liquor store once in a while. Glad you’re around; I have been wondering and worrying a bit. My parents think you’re fab as well (and so do I).
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Rachael, for some reason I can’t comment on your latest post, A Poem In the Key of Depression. Seriously big stuff, and very powerful writing, in whatever key. My husband is a neurosurgeon, so I knew what TM was. So very sorry that you are dealing with this… that you feel so alone. That you are scared, and angry, and betrayed by your body. It’s huge stuff; and I’m really sorry that you are facing it. I’m hoping for some recovery, and the good side of that 30%. Sending support and empathy. I know it feels bleak right now, but give this some time, and see how the PT goes. Easier for me/us to say, from the other side of the internet, but sincere thoughts.
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I switched it from public to private almost as soon as it was published. seems too personal to share.
Will make it public now, based on your words of encouragement and kindness. My mother is an RN, my father was a psychiatrist. So, medical research and journal articles are always key to me.
Can’t believe you’ve heard of TM. I need hope t oday.
Cannot thank you enough. Be well.
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I understand the public/private issue… I’ve pushed public a few times and then wished I hadn’t. I have another blog: The Huntington Chronicles, that I don’t publicize because the issues of Huntington’s disease in my family is just too raw, and personal, sometimes. I get it.
I believe there is hope, but I appreciate and understand the seriousness of TM. Living with a neurosurgeon, I’m aware of many things, that others would prefer not to know about. Makes for some difficult dinner conversations, and sleepless nights, as the lives of others and the cases he sees, stick in my head. It sounds like your condition came on very acutely, and intensely. I hope that the inflammation goes down and you find some relief and improvement. The emotional components are as big of hurdle as the physical, I’m sure. Sending you warm thoughts and sincere hopes for healing… on all levels.
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So sorry to hear about the Huntington’s disease which has clearly ravaged your family.
Used to have a second blog as well which was strictly related to mental health and my experiences as a Bi-Polar in this prejudiced world we inhabit.
Combined with this blog not long ago. YoYo-Dyne is generally sarcastic, amusing and observational..Bad jokes at no charge.
Lost close to 50 subscribers when combining the two. Gained at least ten more though.
It’s always about what you see, your view, and writing it down. Not into stats. The release of writing and feedback is what I crave.
Lost a dear friend to Huntington’s three years ago. His partner of 20 years stood by and cared for him until the end. Watching the progression of the illness is heartbreaking. You have my empathy and sympathy.
Take care.
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My turn: wow, you’ve heard of HD! Not many people have. I’m constantly describing and explaining it to others… awful, awful. I am the survivor in my family, as my mother, grandmother, 49 yr old aunt, and sibs suffer from it. So grateful my children are spared, as I don’t have it, but bitter pill some days. Thanks for the kind words Rachael. Sorry for your friend; it is a very hard progression and it’s wonderful that he had such a devoted partner. Many people walk away.
I sweat sarcasm and tend to be a little kinder in my blogs than I am in real life. Very observational, and and easily amused…as well as amusing. I think your writing is edgier, but I’ve chose to run that way, so no doubt some are surprised when they read the sharper stuff. Le Clown somehow believes I don’t swear, but I rarely don’t swear.
Glad we stumbled upon each other today. 😉 So to speak. See… sarcasm, and edges. Again, thanks for the kind words.
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As for the swearing? I’ll never be Freshly Pressed due to just that. The WP gods despise it, and contimu;lly change the rating on my site to Mature. Naturally I immediately follow with PG. It’s a game at this point.
I know Huntington’s is hereditary but my god; so many in your family. You as well. No wonder you ‘get it.’ As the child of a physician and an RN (she couldn’t leave my sister and I alone for the time to get a medical degree when they were divorced) I’m well aware of many diseases. God, spent breaks in college taking my father’s dictation working in the office, reading the JAMA publications, and accompanying him to his CMA credits lectures at conventions.
Know thy enemy.
You take care of YOURSELF first, and I’m so happy your children do not have the gene.
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Let me clarify, I do NOT have HD, thankfully… but meant that it’s a bitter pill to be the keeper of memories, for so many family members I love. In not having it, my children and theirs are forever spared. But, I will always worry about my nieces and nephews, until each of them is tested. Thanks for your kind words, but I dodged that bullet and I’m very grateful. You get the bonus points in the twisted turns in life game, my friend. So, we will both hope for a left turn back for you, and I will keep you preoccupied, when I can. My email is: bjdqlandau@comcast.net; don’t hesitate to use it. xo
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Aw, so glad to hear that you are not afflicted.Watching so many family members must be devastating. Thank you for the email address. you can reach me at rblackraven at yahoo dot com
xo
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Will do! Enjoy chatting with you Rachael.
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Same here my dear 🙂
xo
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